Tackling depression in TSW & the Dark Times in Life

Tackling depression in TSW & the Dark Times in Life
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Thanks Lorraine Glover for the beautiful artwork!

Topical Steroid Withdrawal is a process that will not only transform your body for the better as you physically heal from the toxins of the steroid use, but it will also test you mentally and emotionally.  Many warriors have gone through the trials of depression while healing and have found ways to cope, stay strong and to keep pressing on.  I felt that it would be a great idea to reach out to those on the facebook groups, itsan.org forum, and to those who have already healed from eczema and get their accounts on how they got through the dark time in their lives.

Continue reading “Tackling depression in TSW & the Dark Times in Life”

Words of Affirmation & Scriptures for Healing

 

Healing is not only a physical process, but an emotional and mental one.  If there’s anything that I’ve learned with battling cancer and now pushing through TSW, is the importance of keeping a good, hopeful attitude and having positive thoughts of affirmation.  In dealing with different situations, the way we think and the words we speak into existence can either have a negative or positive effect on our bodies in so many ways…

Continue reading “Words of Affirmation & Scriptures for Healing”

Words & art from a TSW caregiver

There are many caregivers out there on the itsan.org forums sharing there stories, asking for advice and venting along with those who are suffering.  I commend those who can be a stronghold for those going through topical steroid withdrawal.  I know for myself, at the beginning stages of my healing, my mother was my rock who was there for me through all the ups and downs.  She would express to me how helpless she would feel, in knowing that she couldn’t take this pain away from me, or even take on the pain herself.  Through her love and encouragement, as well as the encouragement of my friends and family I kept pushing through, and I’m continuing to push through, no matter how agonizing it can be at times.  A caregiver member on the itsan.org forums expressed so beautifully his side of this illness and portrayed it in a painting.  I would like to share with you all his work Eternal Optimist…

 

My wife is 3 months into her withdrawals. I feel for everyone who has to go through this.  In honor of my wife and all the countless others who have gone through this and are going through this I did this painting.  It was very therapeutic for me to paint this.

Eternal_Optimist_joe_kresoja_SM

 

When the one you hold most dear has been in chronic pain with no end in sight, lack of sleep and no sign of lasting help, can’t remember the last time there wasn’t any pain, rational thinking and reason have temporarily been itched away.  Watching and listening to your most beloved moan and cry, with sights and sounds you wouldn’t wish on your worst enemy, claws at your very soul.  When the once most positive, optimistic person you have ever met has lost all hope and has attempted to exit the stage.  Sideline judges speak in shadows out of ignorance and cast reasons why, out of their houses made of glass.  The raw grit of life won’t let you run. Selflessly giving, you are the Eternal Optimist for the other.

Joe Kresoja

“Temporary suffering. Permanent healing.” – itsan.org forum response post

I’ve been checking out the International Steroid Addiction Network forums for a few months now and I always feel this strong sense of community and love whenever I check out a post.  It’s great to have others who are going through the same difficulties as you share their experience, knowledge, and just give encouragement to keep pressing on.  We all lift one another up, and this post shows that perfectly.  I was so touched by the beautiful response that was given to a question about being self conscious and embarrassed about TSW, that I just had to share…

Continue reading ““Temporary suffering. Permanent healing.” – itsan.org forum response post”

Early October Update

I had planned to put an update with pics of the month of September, but if anyone is interested, they can check out my pics in the PHOTOS section where I have the progress documented by each month.  So I guess I’ll just go into how I’m currently doing, physically and emotionally as I’m now in my 32nd month of topical steroid withdrawal…

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Felt like venting on the itsan.org forum & current photos…

So I’ve been going on the http://www.itsan.org forums a lot lately, and it’s been helping to talk to others that are going through this topical steroid withdrawal process as well.  Everyone is all trying to just relieve themselves of this horrendous disease called eczema, and reading about others struggles and journeys helps to put it all in perspective, lets me know that I’m not alone in this, and helps to make me feel like there is a community of supporters all rooting for one another.  I was feeling reaaaalllly crappy this past week from going through yet another bad flare this summer and was feeling like venting.  The response I recieved from the other members was so encouraging and filled with love that I instantly felt better, and it gave me the boost to keep on keepin’ on.  I encourage anyone struggling with withdrawing from topical steroids, to check out the site, and join the forum.  There’s a lot of great info that’s being shared on there, and the community of other TSWers makes you feel like you’re not the only one in the world struggling right now 🙂

Here’s the post from Aug, 19th…

Continue reading “Felt like venting on the itsan.org forum & current photos…”

My first post!!!

So this is my very first post!  I was trying to wait and post once all of my pages were complete, but I felt compelled to put this up.  I’m right now 2 years and 5 months into my topical steroid withdrawal process and it’s been a rough journey.  Quite a lot of ups and downs, and I guess a part of me feeling so adamant about posting now is because of how I’ve been feeling.  Throughout this whole process, my body has been pretty consistent with how it wants to heal.  At the very beginning, back in March 2012, once I got off the steroids the withdrawal process started somewhat slowly….then became full blown by June.  Since then, my body likes to heal like this: go bizerk during the summer months, finally taper off early fall, then be tolerable to where I can actually function (be fully clothed comfortably, go out and about) in the winter, slowly start showing withdrawal symptoms again in the spring….then go crazy again come summertime. So this year, right on schedule it started to become its worst towards the end of May.  This year most definitely wasn’t as bad as last year…I can already see signs of it tapering off, but I still have moments of discomfort, oozing, crusting, aching pain, fatigue and emotional ups and downs.  This particularly sucks because I made a leap and moved back to New York (I was living in North Carolina with family) on my own at the end of Aug 2013.  Even then it was extra difficult because I was in the middle of another “summertime healing crisis”.  Once I got here I literally was stuck in the apartment until October!  Yea, no joke.  Like….I didn’t leave my apartment until October!  Thank God I live in a city where everything can come to you.  I had my laundry picked up and dropped off, and I had my groceries delivered to me!  Once I was “back on my feet” (literally, because the worst of my healing was on my legs and feet) I was able to get out and about, even hold down a job.  I was enjoying this wonderful city that I’ve missed for so long.  So it’s been a bit of a disappointment to be back in this state, but I know that it’s just a part of the process.  My body has absorbed soooooo many toxins, and I know the time that it’s going to take to be rid of them completely.  On the upside, this healing process seems to have taken less time then last year, and its not as intense.  On the good days where my feet aren’t so swollen and are not oozing lymph fluid, I can actually put on socks and sneakers for a short time and go to the grocery store, or go on short outings.  Last year I was way too weak to really do any of that. Although I’m feeling a bit frustrated right now, not being able to work (I had to take a leave of absence once it flared up really badly at the end of May), not being able to enjoy the beach and other summertime activities, I still give thanks everyday, and stay as positive as I can.  I know that “this too shall pass” and I gotta go through this hurdle, no matter how long it may take to come out clean and healthy on the other side.  So to anyone who may read this post and check out my site, I just want to let you know that I feel you, I know your pain and your frustrations.  I know what it feels like to fall into the depths of depression, thinking that this agony will never end, but you gotta pull yourself out of it and know that IT WILL END.  Everything ends sooner or later, and you will be a stronger, wiser and a forever changed human being because of this battle that you’ve won!  I foresee victory in my future as well as yours! ❤ Stay Strong Eczema Warriors!!

 

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