I know a lot of us are at home and some are out of work. I want to share with you all a great opportunity for patients and caregivers to participate in research in the comfort of their own home while making some extra money! 💰💵💰
Rare Patient Voice, LLC provides patients and caregivers with rare diseases an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
▪️Why Sign up with Rare Patient Voice? Who knows better than you about your journey and experiences? They connect you with researchers who are developing products and services which can help you and others with your condition. These researchers need patient input so that they develop products and services that have a meaningful impact on patients’ lives. Over the past seven years, Rare Patient Voice has paid patients over $4.8 million dollars.
▪️How will I be paid? You will earn $100 per hour for participating in studies. They pay by check to ensure patients can use their compensation in any way they wish.
Omega Juicers have a 15% off sale going on until January 20, @ 11:59PM! Make sure to take advantage of this awesome sale! I personally have the Omega vsj843r slow masticating juicer and I LOVE it! 🍎🍋🍊🍍🥒 The clean up is easy and the juice comes out super smooth and pure! Click on the link above and make sure to use the discount code: OMG48HRS 😊
This year has been filled with many ups and downs, but in it all, I give thanks. Last year this time I was absolutely miserable and preparing myself to fly down to Florida to heal at my moms place. I told myself I wanted next years birthday to be much better and in a more progressed state of health and I got my wish! Just being in a stress free environment, fresh air, warm weather & sun, and an abundance of healing foods and essential oils really gave me the tools I needed to progress in my healing. This summer brought me to the best state I’ve been in awhile, allowing me to get out and about more frequently and in less and less pain. I found myself enjoying the heat on my skin more and truly just being appreciative of every pain free moment, spreading my arms out breathing in the fresh air and just enjoying natures design. The day before my birthday I was feeling melancholy, stressed and overwhelmed. Birthdays can be a reminder of what you have or haven’t achieved in the past year and going through TSW can make you feel like life is on hold. I started going through the long list of things that need to be done, and stressing over how it’s going to get done, and beating myself up for not being in a certain level of independence and “adulthood”. I picked myself up this morning and gave thanks to God. There’s much to be thankful and celebrated today and I had to remind myself of that. I have a roof over my head, food to eat, family and friends who love and encourage me and a better state of health that will only progress as time passes! I’m thankful that I have this platform to share my experience and be able to connect with and encourage others in this process. Your kind words and good vibes keep me going on sharing my journey and keep me motivated and inspired to continue learning and spreading knowledge on health and wellness. I look forward to my “new year” and having more fun and accomplishing more goals. 💜
Sheesh, it’s been awhile since I’ve given an update with skin progress photos! Thankfully I’ve been doing really well this summer…a lot better than last (where I was homebound!) I will give an update soon, it’s just been a crazy couple of weeks and I haven’t gotten a moment to gather everything together.
I hope everyone is getting along well, and healing nicely! ☺️
I think instead of asking “why is this happening to me?” when we switch it to the understanding that “this is happening FOR me” we realize that it HAS to happen for us to be in our best possible state of health. It HAS to happen FOR me to be eczema free. It can be hard to think this way, but I know when I switched up the way I was speaking my words into existence, a clarity and calm came over me and I knew no matter what I’d be ok. Sending healing vibes to all 💜✌️💛
I just want to say thanks to those who keep pushing me to stay strong and positive through this hell that is topical steriod withdrawal. You’re encouraging words mean more to me than you’ll ever know. It gives me the fuel I need to keep pressing on, no matter how emotionally or physically hard this process may get! Here’s a few lovely words from my friends who keep me going. These were taken from chat conversations. I pray 2016 brings you all healing and amazing health! You WILL overcome your illness, just keep believing in your body’s natural ability to heal and keep feeding it all the nutrients to restore!
Jen, you’re going to rise out of the ashes and be reborn as a Phoenix does to begin a great journey! I can’t even begin to imagine what you have gone through or are going through but I know that there’s a reason, I can only pretend to be as strong as you, and there’s going to be a huge pay off at the end of all of this. Seriously, I think all this bullsh*t you’ve had to endure has lit a fire under your ass that has made you super ambitious and focused which I wouldn’t think you would have had , had you not had no other choice.
Jen you are so compassionate and good things are in store for you. For all the good that you put out it will come back to you ten fold!
Honestly I see such a bright future for you. You’ve been through this for a while so once it’s over I see you being really successful with your blog and all that. Don’t forget about me when you’re famous okay??
you’re gaining and learning so many more things through this experience (even tho it is difficult). ur greatest ministry will come out of ur greatest pain, and sometimes u are just developing something more to give to the world through this experience. i hope u don’t forget that 😊 u are full of strength, even when things feel irritating. nothing is lost in the kingdom of god. not even your time 😊 love you jen!!! u have the sweetest soul 😊 may god continue to pour out his love to u and show u how precious u are! and the gifts that he’s blessed u with during this hard time. pain shapes you and i know for u it shapes u for the better 😊
Thanks for your well wishes but it’s not I that truly deserves it, it’s you! You’re the one that came out of nowhere and lifted the monstrous and and hefty depression and hopelessness I had this year, if I did not come across you, only God knows how bad I’d bad be right now. I can’t put into words how grateful I am, I’m eternally indebted to you, for I can’t repay what you’ve given me. It sounds like an exaggeration but if you truly knew how much that help meant to me, you’d realize that it’s actually an understatement. I wish I could return just a tiny fraction of your assistance with my sanity by sending you $$$ for your computer, I am super broke right now cuz of TSW and literally depend on money and even shelter from my family, just like I was when I was 5, funny how life works lol The minute I get any cash, I give you my word that I’ll donate to your campaign and also buy some supplements and and support your fantastic mission to help other people. This planet needs more people like you dedicated to supporting others.
Aww Jen!! You are so beautiful. God has us RIGHT where we need to be. It’s so hard to trust when we are in serious pain, or look back on all the years we’ve suffered. But our God knows our every pain and ONE day it’ll make sense when we are in heaven and look back. But regardless, we never stop believing for our healing and trusting God’s promises. I’m right here with you girl ❤
Just BELIEVE it eczema warriors! “This too shall pass”! Your mourning will turn into joy! God will give you “beauty for your ashes”! This pain and suffering WON’T last forever!
Stay strong & never give up! Healing does happen, and I can’t wait to read your stories of how much better your health is and how you are taking advantage of life because of all the struggles you went through during your healing process!